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Personal Stories

Wilt

6/14/2003

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United States
Sarah was born August 16.1986. She was diagnosed within days as having mds. She had trouble sucking and had to be tube fed. It was found that she had tetrology of fallot, also, right after birth as her color was  very dusky. Sarah had to stay in the hospital for almost 2 weeks till she got stronger and learned to suck.
Picture
She had a heart catheterization done at two months with a pulmonary shunt put in at that time. When she was 14 months old she had open heart surgery to correct the tetrology of fallot with the surgery being totally successful. Sarah's growth and milestones were all normal. She was a very happy and fun loving baby and toddler. She could zip around in her walker from room to room like an NYC taxi driver! She started preschool at age 3 and was in regular K, 1st and 2nd grades with just an aid to help her in math. In January of her 2nd grade we decided to home school her. For the past eight years we have home schooled Sarah with great success.  She is an A student in all subjects except math. She has always had a rough time understanding and doing math. At present she is on a 8th grade algebra math level.

Sarah is a very gifted musician and artist. She exhibited her art work for the first time this past fall and she  won many ribbons including Best of Show. She also has given many concerts at local nursing homes with her guitar teacher. Sarah plays both the guitar and piano. She hopes to find employment doing what she loves best, making beautiful music for others.

Since Sarah became a teenage she has gotten very shy with her peers even though she has many social events she takes part in, including Special Olympic roller skating and ice skating. These past few months we have seen an improvement in her social skills as she is taking Paxtil for social anxiety.

Sarah is a wonderful and sweet teenager who loves to listen to pop rock, shop, go to movies and email with friends. She is shy but she has a heart of true love. We are blessed to be her parents, as God granted us one of His special angels to care for and love.



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