Share Your Story
When I found out my newborn daughter was diagnosed with MDS shortly after her birth, what helped me out the most was reading personal stories from other parents, who shared their ESH (experience, strength and hope) with me and others, just like me, who have been there....done that!
Won't you please take the time to write up your story, as it relates to your child with MDS? Something YOU write, may be just what another parent of a child with MDS may need to hear today!
Won't you please take the time to write up your story, as it relates to your child with MDS? Something YOU write, may be just what another parent of a child with MDS may need to hear today!
For the best possible experience, please follow these guidelines:
- It is best to type your story first and save it on your computer. Open it often, read it and make any edits, additions or corrections you need BEFORE actually submitting it, which you can then copy and paste right into the form below. This way, you will always have an original copy.
- All stories submitted will be put on the site As Is. I will not make any edits or corrections because it is YOUR story; however, I may break up long paragraphs with extra lines to make reading easier for others.
- At any time, if you wish to add an update and/or updated photo to your story, please fill out the form below.
- All information must be filled out on the form; however, the only information that will be added to your story is your family name and geographical location. The information you provide will remain strictly confidential, and will be entered into my personal database of MDS parents, with your permission, as a resource for other MDS parents, as well as to receive future newsletters and other correspondence.
- After submitting your story, click here to head over to Disqus, which is a commenting system, and create your free Disqus account. This will enable you to view all the comments and questions others may have on YOUR story's page, in addition to commenting on the stories of other families. ALL comments will be approved by myself, thus eliminating spam 100%.
- Once you submit your story below, you will immediately be taken over to MDS Support Group to join. This is a valuable resource with countless threads filled with more information from other families than you'll ever know what to do with!
- Stories are added manually to the site, so please have a little patience. Thank you for sharing ...
