Huntsville, Alabama
One spring morning a childhood friend of mine had an auto accident that almost killed him. Later that day we were told that Lydia was going to have MDS. I remember thinking on the way home from the doctor's that I would gladly trade places with him. This is how I will always remember that day. I get cold all over thinking about the pain that Linda and I felt then.
On the day that we had the amnio done we were able to tell that her little embryo head was shaped just like mine and her big sister's. What a feeling! Later, after we knew about the problem, we went to a heart specialist and he let us look at her with his Doppler ultrasound and we got to see her "run" and move about. We even saw her appear to stop and scratch her leg. By the end of the pregnancy, all that I couldn't tell about her was what her face looked like.
Lydia was born weighing in at 9lbs, 7oz. She has been a strong-willed and strong-bodied child from the beginning. She likes books and learns very fast. (She has help from her sister, who is 13 months older.) She can bully anyone in her day care and has a problem controlling her temper. She is taking dance and talks big for her age. She loves cats, puppies, kites, T.V. and swimming. She is a normal little girl in our eyes and until we get the results back from V.C.U. we will not know for sure what the score is with the MDS. If she has MDS, she proves that one can go through life without being affected in any way. To us she will never be treated differently than any of our other children. We will support her in her upbringing and love her just as we do the other kids. She will be able to reach the top of any field that she so desires.
Lydia was born weighing in at 9lbs, 7oz. She has been a strong-willed and strong-bodied child from the beginning. She likes books and learns very fast. (She has help from her sister, who is 13 months older.) She can bully anyone in her day care and has a problem controlling her temper. She is taking dance and talks big for her age. She loves cats, puppies, kites, T.V. and swimming. She is a normal little girl in our eyes and until we get the results back from V.C.U. we will not know for sure what the score is with the MDS. If she has MDS, she proves that one can go through life without being affected in any way. To us she will never be treated differently than any of our other children. We will support her in her upbringing and love her just as we do the other kids. She will be able to reach the top of any field that she so desires.
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