Adelaide, Australia
It took my husband and I four years to fall pregnant and countless fertility drugs. Once we decided that we were not going to be able to have a child and went off all the drugs, a month later I fell pregnant.
Well we were totally ecstatic. We decided not to have all the blood tests as we thought that the child that I was carrying was so wanted and needed that there would be nothing wrong with it.
Boy were we wrong. As soon as she was born we knew that something was wrong. I didn't even get to hold her. She wasn't breathing; therefore she was purple and there were four doctors and five nurses around Casey whilst she was in the humid crib. She was quickly rushed to neonatal intensive care, and we were then left alone with the midwife.
My husband (Chris) new straight away that there was something wrong but he didn't let on as I was still groggy from the epidural. About an hour later we were informed that Casey had DS and that she needed heart surgery in Melbourne by the time she was 12 weeks old.
It wasn't till we were in Melbourne that we were informed that Casey had a rare type of Down Syndrome called Mosaicism. Of course Chris and I had no idea what Mosaic Down Syndrome was. We were informed that she had 95% normal cells and 5% downs cells.
Well Casey is now 2.5 years old and a total handful. She is the most beautiful child that I have ever seen (I'm a bit biased) she does everything that a "normal" child does at her age except she doesn't say full sentences and if she cant say a word she points at what she wants.
So every new mother or expectant mother that has been informed that their child might or has down syndrome take heart these kids are the most special gift that God can give you and they will light up your life to no end. Casey is my hero because everything that she has had to endure she has done it with a smile.
Boy were we wrong. As soon as she was born we knew that something was wrong. I didn't even get to hold her. She wasn't breathing; therefore she was purple and there were four doctors and five nurses around Casey whilst she was in the humid crib. She was quickly rushed to neonatal intensive care, and we were then left alone with the midwife.
My husband (Chris) new straight away that there was something wrong but he didn't let on as I was still groggy from the epidural. About an hour later we were informed that Casey had DS and that she needed heart surgery in Melbourne by the time she was 12 weeks old.
It wasn't till we were in Melbourne that we were informed that Casey had a rare type of Down Syndrome called Mosaicism. Of course Chris and I had no idea what Mosaic Down Syndrome was. We were informed that she had 95% normal cells and 5% downs cells.
Well Casey is now 2.5 years old and a total handful. She is the most beautiful child that I have ever seen (I'm a bit biased) she does everything that a "normal" child does at her age except she doesn't say full sentences and if she cant say a word she points at what she wants.
So every new mother or expectant mother that has been informed that their child might or has down syndrome take heart these kids are the most special gift that God can give you and they will light up your life to no end. Casey is my hero because everything that she has had to endure she has done it with a smile.
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