Omaha, Nebraska
We are the proud parents of 4 week old baby girl who is the light of our lives! Hannah Quinn was diagnosed at 20 weeks gestation with mosaic ds. I can tell you one thing....it was all worth it. Hannah Quinn is a very special child. We have only just begun this journey!
UPDATE Submitted: October 12, 2001
Here we are 20 months later than my first published story here, I thought I would update Hannah's story for you!
Hannah turned two on Sept. 1, 2001, and she is every bit of two!
She had her open heart surgery at 3-1/2 months old to repair an AV Canal Defect, and after several monthly visits her cardiologist told us to return yearly for a check up. She still has a leaky mitral valve but it is mild to moderate and of no concern right now.
Since that time Hannah has grown into a delightful, happy, super active, stubborn, normal two year old. She has been tested and tested by her assigned therapists from day one and continues to test in all categories in the "just above normal" on the normal scale and off the scale of DS. Hannah walked at 10 months old and was in a twin bed by the time she was 16 months old. She was climbing out of her crib early on so after attempting a toddler bed (which she wouldn't stay in) we moved her to the twin bed with a rail and there she remains. This is her new trampoline! Hannah's motor skills are the most advanced at the 3 year old level, all others including language are right at or above normal. All of her original four therapists have discontinued her accept for her language therapist who will stay on until she's three to make sure her language will develop normally. So far, so good! We attribute her advanced motor skills (i.e. walking, running, jumping, climbing) to her participation in a kid's fitness center opened last year in Omaha, she attends two weekly classes.
Here we are 20 months later than my first published story here, I thought I would update Hannah's story for you!
Hannah turned two on Sept. 1, 2001, and she is every bit of two!
She had her open heart surgery at 3-1/2 months old to repair an AV Canal Defect, and after several monthly visits her cardiologist told us to return yearly for a check up. She still has a leaky mitral valve but it is mild to moderate and of no concern right now.
Since that time Hannah has grown into a delightful, happy, super active, stubborn, normal two year old. She has been tested and tested by her assigned therapists from day one and continues to test in all categories in the "just above normal" on the normal scale and off the scale of DS. Hannah walked at 10 months old and was in a twin bed by the time she was 16 months old. She was climbing out of her crib early on so after attempting a toddler bed (which she wouldn't stay in) we moved her to the twin bed with a rail and there she remains. This is her new trampoline! Hannah's motor skills are the most advanced at the 3 year old level, all others including language are right at or above normal. All of her original four therapists have discontinued her accept for her language therapist who will stay on until she's three to make sure her language will develop normally. So far, so good! We attribute her advanced motor skills (i.e. walking, running, jumping, climbing) to her participation in a kid's fitness center opened last year in Omaha, she attends two weekly classes.
We feel very blessed that Hannah continues in her normal development but we were also very prepared to nurture any possible developmental delays related to MDS. Her leaky mitral valve could cause problems in the future as a teen or even as an adult and we will cross that bridge later but for now our self-education into DS and MDS has made a world of difference in our willingness to help and Dad and I are now personal consultants with the local genetics clinic for MDS.
Thank you and God Bless America!
Thank you and God Bless America!
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