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Personal Stories

Señaris

5/14/2011

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Santiago, Spain
Mi hija tiene un porcentaje de 14% de MDS; sin rasgos faciales down.  A nivel académico no tiene problemas, aunque su actitud sí es más infantil de lo que corresponde a su edad (1 año menos en su edad mental).
Sus síntomas son "muy leves", pero me preocupa su aceptación por parte sobre todo de los chicos de su edad y también cómo empezar a hablar con ella sobre todo lo relacionado con la sexualidad (cómo explicarle su problema a la hora de tener hijos en un futuro,...). Ella ha sabido lo de su mosaicismo hace sólo 2 años y no lo está llevando bien porque no se identifica con un Down y se niega a hablar de ello.Me gustaría contactar con personas con casos parecidos.
Translation (courtesy of Google):  My daughter has a percentage of 14 % of MDS ; without facial features down . Academically has no problems, although their attitude itself is more child than for their age (1 year less on their mental age) .Its symptoms are " very mild" , but I worry about its acceptance by all of the kids his age and also how to start talking to her about everything related to sexuality ( how to explain his problem when to have children in the future ... ) . She has known about her mosaicism only two years ago and is not getting along because it is not identified with a Down and refuses to talk about ello.Me like to contact people with similar cases .

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