Belgium
I am mother of four children. The youngest is Arianne and she has MDS. She was born on March 14,1998. She was 3 weeks early. I was 38 when she was born. A few hours after she was born, I saw for myself that she had DS. The pediatrician came and told us that she thought Arianne had DS, but she wasn't sure because our baby had just a few signs of Down Syndrome.
They took her blood to be sure. After 3 weeks the answer was that she had MDS. She has 25% cells with the extra chromosome. She was a very strong baby. I breast-fed her until she was 10 months. She did everything like sitting, crawling and walking, just like any other child. She wasn't very quick but it all happened at a normal age. She walked when she was 18 months. She speaks very good.
She doesn't have any therapy, but we do have some help. Once a month someone of 'home help' comes and she plays with Arianne and talks with us for 2 hours. She monitors her development. She gives us some good advice.
At the moment she is nearly 3 years old. She goes to the same school as her sister since November. She does it very well. She had some tests but the center told us that there is no problem at this time. She doesn't need any therapy.
Like any other girl, she likes to play with other children. She likes to sing and dance, and she loves to swim. She is a little sunshine with a very strong will.
I have lots of questions, because here in Belgium there isn't a lot of children like my daughter. We don't know anyone. After I read your stories, I knew I wasn't alone. We take the days one at a time and hope she has a happy life.
She doesn't have any therapy, but we do have some help. Once a month someone of 'home help' comes and she plays with Arianne and talks with us for 2 hours. She monitors her development. She gives us some good advice.
At the moment she is nearly 3 years old. She goes to the same school as her sister since November. She does it very well. She had some tests but the center told us that there is no problem at this time. She doesn't need any therapy.
Like any other girl, she likes to play with other children. She likes to sing and dance, and she loves to swim. She is a little sunshine with a very strong will.
I have lots of questions, because here in Belgium there isn't a lot of children like my daughter. We don't know anyone. After I read your stories, I knew I wasn't alone. We take the days one at a time and hope she has a happy life.