Atlantic City, New Jersey
Hi. My name is Aisha Oliver. We don't know whether our son has full DS or MDS; however, he doesn't appear to show full facial characteristics but does show physical characteristics such as the line in his hands, the skin on his neck and the space between his big toe. He was also diagnosed with a Complete AV Canal when I was 30 weeks. This has been a very interesting ride for us. It has definitely added something to my family that I cannot explain.
Zedekiah is definitely our miracle child. We were not expecting to have anymore children as I was on birth control for 6 years when we conceived. We were shocked and wasn't sure how we would care for another baby let alone one with DS. This pregnancy was very different. I had some spotting up until I was exactly 13 weeks. I didn't have morning sickness as bad with my other two. I had carpal tunnel with this pregnancy that took a toll on me physically and I had bad headaches in the beginning. During my 20 wk ultrasound we, which was a level 2 we found out the sex, had the nuchal translucency test and everything. I had even had sequential screening done early on which determined that my DS risk was 1/6500. I was told that everything was okay. During this time I went back to my original OB just out of a feeling that I had. During my 29 week check up I asked him for another ultrasound because I was afraid that I was further along and didn't want to go into early labor after having 2 previous c-sections. Thank God he listened to me.
The following week I went to see a perinatologist. They did another level 2 ultrasound and low and behold found that my son had a complete AV Canal which was common amongst children with DS. I was devastated. I opted not to have an amnio because I didn't want to risk pre-term labor and no matter what or how confused I was I wanted to give him the best chance ever.
On January 22, 2010, God blessed us with Zedekiah. They told us the test came back positive for DS. What his % of normal/affected cells are we don't know. What we do know is that the doctor has expressed to us that he is impressed and that he is not like any DS baby that he's cared for. His muscle tone is strong. My son lifts his head when placed on his stomach as well as pushes with his feet. He eats well (4oz) Currently, at 6 days old he is still in the NICU due to his oxygen saturation levels. The have weened him completely off of the oxygen and his stats are in the 90s. He is now on bili-lites to take care of his jaundice. People go their entire lives trying to find their purpose. God blessed us with ours and he is already the joy in our lives.
The following week I went to see a perinatologist. They did another level 2 ultrasound and low and behold found that my son had a complete AV Canal which was common amongst children with DS. I was devastated. I opted not to have an amnio because I didn't want to risk pre-term labor and no matter what or how confused I was I wanted to give him the best chance ever.
On January 22, 2010, God blessed us with Zedekiah. They told us the test came back positive for DS. What his % of normal/affected cells are we don't know. What we do know is that the doctor has expressed to us that he is impressed and that he is not like any DS baby that he's cared for. His muscle tone is strong. My son lifts his head when placed on his stomach as well as pushes with his feet. He eats well (4oz) Currently, at 6 days old he is still in the NICU due to his oxygen saturation levels. The have weened him completely off of the oxygen and his stats are in the 90s. He is now on bili-lites to take care of his jaundice. People go their entire lives trying to find their purpose. God blessed us with ours and he is already the joy in our lives.
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