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Personal Stories

Loden

3/29/2006

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Austin, Texas
My son is about to turn 3.  He is the LOVE of our lives.  Dylan was born at 36 weeks because I had toxemia.  Dylan did not show any characteristics of Down Syndrome.  He had a mild case of jaundice and once that cleared up they sent up home.  When Dylan was 2 weeks our Pediatrician heard a murmor.
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We saw a cardiologist and they told us Dylan had a complete AV canal defect and would need open heart surgery.  They sent us home after telling us.  We went home and looked up the name of the defect on the internet.  It said 50% of the babies that have it have down syndrome.  We called the cardiologist back and he said Dylan did not look like he had down syndrome but we could have him tested.  2 weeks later we were told he had MDS.  

Dylan is the happiest little boy I have ever seen.  He is very sociable.  He wears glasses only because he is farsighted just like his mommy is.  He now has a younger sister and plays with her all day.  He loves ELMO, going for rides with his Grandpa and being outside for hours at a time.  He loves to jump especially on the trampoline.  His speech is delayed.  He walked right at a year old.  It is very scary to hear that your child has down syndrome at first but the biggest thing is to just let them be who they are and achieve the most they want and can out of life.  

Dylan is wonderful and no matter what happens he is not defined by having MDS.  I want to thank my parents for all of their support.  Dylan has the best grandparents in the world.  They love him no matter what and he is always going to be "OUR DYLAN."

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