Ringgold, Georgia
When Amber was first born I noticed that something was just not right. She had low muscle tone and did not seem to develop as quickly as her sister Abby did. The doctor's kept assuring us that nothing was wrong and that she was perfectly healthy.
As Amber got older we noticed that she had trouble sitting up and her developmental milestones were reached very late. We continued to question her doctor and he assured us that everything was fine. When Amber was three years old she had a vocabulary of 10 words. At this point we began working with the school system in speech and O.T. We had a wonderful teach in a SDD classroom that began to question us about Amber's development and some of her physical features such as her eyes and hands. She suggested that we meet with a new doctor when we talked to her about our concern's not being a issue with Amber's current doctor.
The first time we met with Doctor H., he told us right off the bat that he thought Amber had MDS. We talked at length about all the conditions and walked away from the meeting with a referral to a geneticist and the reality that Amber would always be special. We already thought she was but this was a different kind of special than what we expected. Needless to say Amber's test results did come back positive. I can assure you that my family's life has been better for having Amber exactly the way she is. She is starting Kindergarden this fall, takes a tumbling class at a local gym, and even takes horseback riding lessons. I can really say that Amber is a wonderful child and she is the funniest, sweetest, most loveable child that I have ever met. So we did get exactly what we wanted.
The first time we met with Doctor H., he told us right off the bat that he thought Amber had MDS. We talked at length about all the conditions and walked away from the meeting with a referral to a geneticist and the reality that Amber would always be special. We already thought she was but this was a different kind of special than what we expected. Needless to say Amber's test results did come back positive. I can assure you that my family's life has been better for having Amber exactly the way she is. She is starting Kindergarden this fall, takes a tumbling class at a local gym, and even takes horseback riding lessons. I can really say that Amber is a wonderful child and she is the funniest, sweetest, most loveable child that I have ever met. So we did get exactly what we wanted.
RSS Feed
