Chattaroy, Washington
This story is submitted by a neighbor of a family with a child, who has MDS. What an inspiration! Thank you Diana!!! :>)
I had a garage sale today, and a father and his three children came into the garage, one was a very small statured young boy. His height and personal looks gave him the look of a child of about 7 or 8. I said, hi to him as he was wearing western clothing and I asked if he was a cowboy. He responded with a yes he was. His younger brother and younger sister laughed and we got to talking.
I had a garage sale today, and a father and his three children came into the garage, one was a very small statured young boy. His height and personal looks gave him the look of a child of about 7 or 8. I said, hi to him as he was wearing western clothing and I asked if he was a cowboy. He responded with a yes he was. His younger brother and younger sister laughed and we got to talking.
His father and my husband got to talking and he mentioned that R.J. had MDS. I was very shocked to learn that he was 16. He was very sweet and offered to shake my hand and then threw his arms around me and gave me a huge hug, I loved it. I returned the hug and received a big grin from ear to ear. He has had so many medical problems throughout the years and has a mental age of about a 5 yrs. old, I thought personally that he was a little more advanced but, since I'm not qualified to judge, I let it go.
I have been reading more about the syndrome and have a better understanding of his problems. But I can tell you that he was 16, articulate, very shy one minute and very outgoing the next. Like his counter parts, he as very loving, hugged his father often as we talked. Was a very pleasant encounter. So I believe that this should be reassuring for some of the parents with children with MDS that they do live a happy life........Diana
I have been reading more about the syndrome and have a better understanding of his problems. But I can tell you that he was 16, articulate, very shy one minute and very outgoing the next. Like his counter parts, he as very loving, hugged his father often as we talked. Was a very pleasant encounter. So I believe that this should be reassuring for some of the parents with children with MDS that they do live a happy life........Diana
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