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Personal Stories

Cope

1/24/2000

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Perth, Western Australia
Hello, my name is Diane.

When I was pregnant with my daughter at the age of 39, I knew the risks of having a child with a disability, and decided against the tests offered to me. My husband and I talked about how we felt about these children, and how we thought we could cope with a child with a disability -- after all, this baby was a product of us both. 
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I had also had seven miscarriages before Verity. However, the shock after being told she had Downs was something else. I was so scared she was going to die.  I don't know why I thought she would.

In hindsight it was probably because of my past history. The fact she had Downs came second . From the moment she was born we loved her, and as long as she was healthy was all that mattered. Now we cannot imagine life without her. 

She is a happy, loving child who goes to mainstream school and is doing fine with the extra help she gets at home. She is a blessing not a burden. I am just learning about the net etc, and I am hoping that I will be able to communicate with other mds parents.  Even though I keep in touch with the DSA here, I often get the "Oh, you have nothing to worry about" attitude from parents with children with trisomy 21.

When Verity was born, I was told there was only one other MDS child in Western Australia, and have been unable to converse with anyone in my own country with a child with mds. I have always vowed to myself that I will help her reach her full potential as much as I can, and the rewards of that attitude have been three fold. She has a family who adores her and will always be there for her, for now that is all that matters, and each day will be a new experience for us all.  

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