Barabas

Romania

My little daughter, Flavia, 2 years old, was diagnosed with MDS.  Here, in Romania, I didn't find books dedicated to this subject (especially for parents). What can I do to get one, to send me one, and where can I resolve her problems (She was operated in Hungary at both knees, but she still can't walk!).

I knew a Romanian girl who had a identical problem and who was operated on in England, ten years ago, successfully, but her operation cost was 80,000$ (from DS Association England, I heard), money that I never can get.

I quit my job to stay with Flavia, and I work at home as dtp for a few doctors.  I earn approximately 75$ each month, enough to buy little things for me and my girl.    

I am not a desperate woman, I try to learn and do things which can help us.