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Personal Stories

Ruyter

7/11/2011

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Langley BC Canada
hi. as of just recently my wife and I had a 19 week ultra sound. we were hoping to find out the gender so we could be a bit more ready for when the baby comes. later the day of we get a call from our midwife explaining that she doesn't deliver babies with problems. so of course we start to worry right away. she sends us to a specialist at a women's hospital a hard few days later.

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Blank

5/20/2011

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Elsemere, Kentucky
Right when my daughter was born i knew she was special. i just didn't know how special. as she grew so did her knowledge.even though she has mosaic down syndrome she didn't let that stop her. her lifelong dream is to become a best selling horror author. i can believe she can do it as long as she tries her best and sets her mind to it.

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Señaris

5/14/2011

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Santiago, Spain
Mi hija tiene un porcentaje de 14% de MDS; sin rasgos faciales down.  A nivel académico no tiene problemas, aunque su actitud sí es más infantil de lo que corresponde a su edad (1 año menos en su edad mental).

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Duffy in WA

3/28/2011

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North Bend, Washington
Our beautiful son, Aidan blessed us with his presence May 14th 2010. After a complicated natural delivery he was rushed to the NICU because he had fluid in his lungs. My husband Brandon went with him. I didn't get to see him for two hours! I was wheeled into his room. He had a big oxygen dome over his head. At that time all I cared about was him recovering and coming home, but the Pediatrician felt it was the right time to say, "Your baby has some characteristics of Down Syndrome.  We would like to take blood for genetic testing."

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Pardal

3/12/2011

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Vassouras, RJ - Brazil
Tenho uma filha com síndrome de down por mosaicismo,graças a Deus ela é uma criança saudável, não teve nenhum comprometimento.

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Loguna

2/2/2011

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Orenburg, Russia
I live in Russia, therefore badly I know English language.  Bogdan was born 23.09.2010.  Births went wrong. I am suffering. When he was born, I was happy.  Doctors at birth suspect nothing. A day later he was diagnosed with heart disease. We were transferred to the perinatal center. There's pediatrician told me that Danny have stigms dizembriogeneza.

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Smith

1/22/2011

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Lebanon, Pennsylvania
Fighting for her daughter's rights
by Bill Warner


September 4, 2010
Lebanon Daily News (Lebanon, PA)


Wendy Smith never considered herself a crusader or someone who would stick out in a crowd. But that all changed, she said, when the system failed her daughter, Heather Sholley, who was born with Mosaic Down Syndrome.

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Saddler

12/13/2010

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Hermitage, Tennessee
My daughter Dahlia, was diagnosed with Mosaic Down Syndrome at birth. She has a rare form which the geneticist here in Nashville has not seen.

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McCollister

6/16/2010

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Gardner, Oregon
Hi my name is Rene. I married at the age of 18; gave birth to 4 beautiful children but I also had 2 miscarriages. I remarried at the age of 34 at 35 I gave birth to another child; I then had another sad miscarriage; At the age of 38 I found out I was pregnant again, at my 4 month visit the Doctor wanted me to get an Amniocentesis done because something about the blood work dident look right.

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Kneer

6/8/2010

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United States
I am a parent of two girls the oldest is 12 and the youngest is 3. Both of my girls have mds the percentage is different for each of them. My older daughter Sara has it in 30% of her cells and my younger daughter has not yet been determined.

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