Brisbane, Australia
My daughter was diagnosed with MDS last October, 3 days after her 4th birthday. My daughter has slightly noticeable developmental delays, i.e. speech, toilet training, social skills. Her eyesight is still to be checked. She shows absolutely no outward signs of being an MDS child.
As I have only just embarked on my discovery tour of her world as it stands now, I am finding it very hard to find much info...even to speak to people who understand where 'I' am coming from. Any parent with children with full downs doesn't really wish to speak to me, and I can understand that.
My daughter is lucky to be as slightly affected as she seems. Even my specialists over here in Australia are quite fascinated by my daughter, which I see as a good thing. It just is all still very confusing for myself and the affect it has on my family. I'm sorry my daughter has a developmental disability called MDS, and they look at you as though you are making it up. My daughter is a very happy, healthy and intelligent child. I suppose that is all I have to say at the moment and would love to hear from other people. Natalie
My daughter is lucky to be as slightly affected as she seems. Even my specialists over here in Australia are quite fascinated by my daughter, which I see as a good thing. It just is all still very confusing for myself and the affect it has on my family. I'm sorry my daughter has a developmental disability called MDS, and they look at you as though you are making it up. My daughter is a very happy, healthy and intelligent child. I suppose that is all I have to say at the moment and would love to hear from other people. Natalie
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