Boynton Beach, Florida
Hi, my name is Cindy and I just gave birth to my first baby. His name is Stephen. Well let me start before he was born, the doctor heard a heart murmur and saw something in the ultra-sound.
Little Rock, Arkansas
Hello everyone! My name is Kimberly Hines and I have a son named Aidan who will be 3 years old in October with MDS. I was sick all through my pregnancy with him and had a sonogram at 6 months that had discovered Aidan’s femur bone was shorter than average.
Dana Point, California
We received Emilie's diagnosis after 17 long, frustrating months. I have to say that we were more relieved than upset when we received the diagnosis because it answered our "why" questions.
Wigan, United Kingdom
Hi, my name is Gaynor and Igave birth to twins in 1992. Amy has downs and her twin brother has c/p. I was told Amy had Mosaic Downs more or less straight away after birth after a few tests to confirm.
Bellerose, New York
Emily was born September 16, 2003. We were ecstatic. We had the perfect pair (we also have a son who is 3 years older than Emily). Shortly after she was born, I began to have weird dreams. In these dreams a doctor is telling me my beautiful baby girl has Down Syndrome. I pushed these dreams out of my mind after talking to a friend of mine who works with kids with DS.
Cape Cod, Massachusetts
After my 18th week ultrasound for my fourth child, I received a phone call from my OB on a Monday afternoon. I immediately knew something was wrong. It is funny because earlier in the day I remembered feeling relief that I didn't get a call. Part of me knew something was wrong.
My son is about to turn 3. He is the LOVE of our lives. Dylan was born at 36 weeks because I had toxemia. Dylan did not show any characteristics of Down Syndrome. He had a mild case of jaundice and once that cleared up they sent up home. When Dylan was 2 weeks our Pediatrician heard a murmor.
Sarah was born August 16.1986. She was diagnosed within days as having mds. She had trouble sucking and had to be tube fed. It was found that she had tetrology of fallot, also, right after birth as her color was very dusky. Sarah had to stay in the hospital for almost 2 weeks till she got stronger and learned to suck.
Hello my name is Lisa. I also have a daughter who as MDS. She just turned 2yrs. I was 16yrs old when I gave birth to my daughter (Rebecca). When I was pregnant the doctors told me that it was possible for Rebecca to have Downs. But I refused the tests offered to me b/c of the risk for a miscarriage and it didn't matter if my child had it or not I would still love her.
San Antonio, Texas
Stephanie was my first child, born January 7, 1985 in Iowa. Her father and I were both 21 years old and had not been married very long. My pregnancy with her was really uneventful. The only problem the doctor saw was lack of weight gain on my part and was worried that the baby wasn't growing.
Fact About Us
Born in July 1999, we were the first and only website on the internet with any information on Mosaic Down Syndrome.