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International Mosaic Down Syndrome Association Information

Mosaic Down Syndrome FAQ's

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Read the entire MDS Research Study from the Medical College of  Virginia at Virginia Commonwealth University

Down Syndrome:  Health Issues

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Welcome to Mosaic Down Syndrome on the Web.   My name is Bree, and I am the proud mommy of Morgan, my beautiful angel girl, born on July 17, 1999, and diagnosed with MDS.  When my daughter was born, there was absolutely nothing on the Internet about MDS.  I was devastated.  It was because of this devastation and lack of information that this website now exists...so new parents won't ever have to experience what I did (and so many others).   I know that this site's contents may appear "general" to many of you, but I wish I had a website such as this to go to in July, 1999, the day I found out what my daughter's diagnosis was.  I do not feel alone anymore.  This site continues to be updated, so do check back frequently.  Thank you.

To navigate through this site, use the navigation bar to your left.  There is a link on the bottom of each page that will bring you back here.  Be sure to check ALL the links to your left so you don't miss a thing!

Please do not send me your medical questions...you'll find a link to your left where you can ask medical professionals your questions OR you can join our MosaicDS support group and post your questions there! 

Hannah Hannum HAD a Mystery Diagnosis

Recently, the American station, Discovery Health, highlighted one of our families' stories on Mystery Diagnosis. Hannah Hannum is one of thousands of individuals with mosaic Down syndrome who was diagnosed later in life.Recently, the American station, Discovery Health, highlighted one of our families' stories on Mystery Diagnosis. Hannah Hannum is one of thousands of individuals with mosaic Down syndrome who was diagnosed later in life.

The average age for individuals to be diagnosed with mosaic Down syndrome is 1-4 years of age. The most common reason for this late diagnosis is the lack of knowledge in the medical field on this rare form of Down syndrome. However, many individuals can go undiagnosed up into adulthood and there are still thousands who never receive a diagnosis.  Continue reading on the IMDSA Website  >>

MDS Parent Recommended Reading

Communication Skills (47150 bytes)    Fine Motor Skills (136216 bytes)    Gross Motor Skills (115908 bytes)

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IMDSA Save The Date

If you'd like to correspond with other families with children diagnosed with MDS, AND become a part of this wonderful growing support network, join our Family Connect Program today! 

If you need to speak with someone today, please e-mail Linda or you may call her at 1-865-546-6500 (EST, during the day) or 1-865-688-2956 (EST, evenings and weekends).

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"Integrating Genetics Into Healthy Living"

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Canadian Down Syndrome Society


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This site is hosted, designed and maintained by
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This site last updated Friday, May 10, 2013