Welcome to Mosaic Down Syndrome on the Web.
My name is Bree, and I am the proud mommy of Morgan, my beautiful angel
girl, born on July 17, 1999, and diagnosed with MDS. When my daughter was
born, there was absolutely nothing on the Internet about MDS. I was
devastated. It was because of this devastation and lack of information
that this website now exists...so new parents won't ever have to experience what
I did (and so many others). I know that this site's contents may appear
"general" to many of you, but I wish I had a website such as this to go to
in July, 1999, the day I found out what my daughter's diagnosis was. I do not feel alone
anymore. This site continues to be updated, so do check back frequently. Thank
To navigate through this site, use the
navigation bar to your left. There is a link on the bottom of each page that will
bring you back here. Be sure to check ALL the links to your left so
you don't miss a thing!
Please do not send me your medical
questions...you'll find a link to your left where you can ask medical
professionals your questions OR you can join our
post your questions there!
Hannah Hannum HAD a
the American station, Discovery Health, highlighted one of our
families' stories on Mystery Diagnosis. Hannah Hannum
is one of thousands of individuals with mosaic Down syndrome who was diagnosed
later in life.
age for individuals to be diagnosed with mosaic Down syndrome
is 1-4 years of age. The most common reason for this late diagnosis is
the lack of knowledge in the medical field on this rare form of
Down syndrome. However, many individuals can go undiagnosed up
into adulthood and there are still thousands who never receive a diagnosis.
Continue reading on the IMDSA
MDS Parent Recommended Reading
Click on the desired book to
purchase at Amazon.com today!
you'd like to correspond with other families with children diagnosed with
MDS, AND become a part of this wonderful growing support network, join our
If you need to speak with someone
today, please e-mail Linda or you
may call her at 1-865-546-6500 (EST, during the day) or 1-865-688-2956 (EST, evenings and
Some of the documents on this website are in
You'll need Adobe Acrobat Reader to view them.
"Integrating Genetics Into Healthy Living"
Canadian Down Syndrome Society
Down Syndrome Community
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This site last
updated Friday, May 10, 2013